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| 1 | +--- |
| 2 | +layout: post |
| 3 | +title: "Federation First: Making the £600 Million Health Data Research Service Work" |
| 4 | +date: 2025-10-21 |
| 5 | +categories: [Trusted Research Environments, Health Data, Federation] |
| 6 | +tags: [DARE UK, HDRS, TREvolution, federated analytics, interoperability] |
| 7 | +--- |
| 8 | + |
| 9 | +In April 2025, the UK Government announced a landmark £600 million investment to establish a **Health Data Research Service (HDRS)** — a secure, single access point to NHS datasets in England. This initiative, backed by Wellcome and central to the Life Sciences Sector Plan, aims to address long-standing challenges in health data access for researchers. |
| 10 | + |
| 11 | +But as [DARE UK](https://dareuk.org.uk/) rightly points out, ambition alone won’t be truly transform healthcare, the HDRS must be built on a foundational principle: **federation**. |
| 12 | + |
| 13 | +## Federation: Connecting What Already Works |
| 14 | + |
| 15 | +Health data in the UK resides in numerous **Trusted Research Environments (TREs)** and **Secure Data Environments (SDEs)** — each with robust privacy protections. Rather than centralising sensitive data into a new mega-repository, HDRS should build **secure bridges** between these existing environments. |
| 16 | + |
| 17 | +This federated approach enables: |
| 18 | + |
| 19 | +- **Remote analysis**: Researchers send analysis code to run within local TREs/SDEs, returning only anonymised insights. |
| 20 | +- **Guarded data convoys**: De-identified data moves securely between environments under strict governance. |
| 21 | +- **Hybrid models**: Combining both methods for complex studies. |
| 22 | + |
| 23 | +These mechanisms preserve data custodianship and public trust while unlocking the power of distributed datasets. |
| 24 | + |
| 25 | +## TREvolution: From Blueprint to Reality |
| 26 | +DARE UK’s **TREvolution project**, funded by UKRI, is standardising operations across TREs/SDEs. It’s developing tools for federated analysis, semi-automated output checking, and shared standards for data formatting, access, and auditing. |
| 27 | + |
| 28 | +Early adopter projects are already piloting these capabilities in over 10 live environments — including NHS sub-national SDEs, the national TRE in Wales, and the UK Data Service. |
| 29 | + |
| 30 | +## What’s Next for HDRS? |
| 31 | + |
| 32 | +To succeed, HDRS must: |
| 33 | + |
| 34 | +- Embed **federation** from day one |
| 35 | +- Mandate **interoperability** via open standards |
| 36 | +- Scale up existing infrastructure |
| 37 | +- Prioritise **public and patient involvement** with transparency and accountability |
| 38 | + |
| 39 | +This vision extends beyond health. As the UK explores a **National Data Library (NDL)**, federation offers a model for cross-domain research infrastructure — spanning education, environment, social welfare, and more. |
| 40 | + |
| 41 | +## A Global Opportunity |
| 42 | +Federation also positions the UK for international collaboration. The **European Network of Trusted Research Environments (EOSC-ENTRUST)** has already published a blueprint informed by DARE UK’s Federated Architecture. |
| 43 | + |
| 44 | +As we build HDRS, the question isn’t just *how* — but *who* will help assemble it. The challenge is complex, but the opportunity to deliver public benefit is transformational. |
| 45 | + |
| 46 | +## eScience Lab in TREvolution |
| 47 | + |
| 48 | +eScience Lab is a [partner in TREvolution](https://esciencelab.org.uk/projects/trevolution/) with a particular focus on FAIR (Findable, Accessible, Interoperable, Reusable) and transparent analysis of sensitive data and use of RO-Crate. We are joining this with our effort on the [federated analytics programme in Health Data Research UK](https://esciencelab.org.uk/projects/federated-analytics/), and the European architecture for trusted research environments in [EOSC-ENTRUST](https://esciencelab.org.uk/projects/eosc-entrust/). |
| 49 | + |
| 50 | +--- |
| 51 | + |
| 52 | +_This blog post is syndicated from DARE UK <https://dareuk.org.uk/news-and-events/the-600-million-question-how-to-make-the-health-data-research-service-work/> _ |
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